Do You Keep ‘Glutening’ Yourself? Check out this List of the Hidden Sources of Gluten

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One of the hardest and most frustrating parts about having Celiac Disease and being GlutenFree is continuing to get glutened after the fact.

The first 6 months to a year were by far the hardest. I made mistake after mistake eating things I assumed were gluten-free but weren’t like: soy sauce, licorice, french fries or my Bloody Mary mix.

I wasn’t tediously reading every label, ALL the time or asking enough of the right questions. It seemed no matter how much I educated myself on the do’s & don’ts, the effects of cross contamination, read all the labels, I was still getting sick.

Restaurant glutening and CROSS CONTAMINATION is a huge problem, especially with items that say GF. The actual ingredients they use might not have gluten but where its prepared, the pans they cook it on or the utensils used, may. Here’s a few food examples of what to look out for:

  • sauces/dressings (wheat is used as thickening
    agent)
  • fake cheese
  • some vegan or vegetarian items
  • iced tea may contain barley
  • sausages/meatballs (wheat is used as binder)
  • a ‘roll their eyes’ type of waiter who might not
    take you seriously
  • http://glutenfreegal.com/2013/07/08/check-out-my-interview-for-glutenfree-restaurant-tips-on-gfreeandhappy/

Misc. Products that may contain wheat:

  • multi vitamin
  • aspirin coating/medications
  • cough syrup/cough drops
  • lip balm or lipstick
  • pet food
  • products that say gluten free but made in wheat facility
    and/or using shared equipment
  • candy (ie: mentos and licorice)
  • yeast

If sharing a kitchen with a gluten person then you need to take extra precaution with:

  • utensils
  • toaster
  • pots n pans
  • shared plates,
  • cutting board
  • counter crumbs
  • shared food like: peanut butter and jelly, butter, cream cheese, etc…

I suggest getting gluten-free labels for your home so it is easier for everyone to distinguish what is what. Here is a great list of 30 places gluten hides by GlutenFreeLabels.com:
http://glutenfreelabels.com/30-places-gluten-hides/

There is ‘hidden wheat’ everywhere and I mean everywhere, plus all the different names wheat can be called by:

  • Triticale (a hybrid of wheat and rye)
  • Malt
  • Duram (durum)
  • Hydrolyzed wheat protein
  • Semolina
  • Einkorn
  • Emmer
  • Kamut
  • Spelt
  • Bulgur
  • Graham
  • Farina
  • Matzo/Matzah
  • Couscous
  • Rusk(a fancy way of saying bread crumbs)
  • Seitan

Here are catch phrases to look for and use caution with:

  • Binder or binding
  • Cereal
  • Filler
  • Gum base
  • Modified food starch
  • Modified starch
  • Monosodium glutamate (MSG)
  • Edible starch
  • Starch
  • Thickener or thickening
  • Carmel Color
  • Natural Flavors
    *Please contact the producer/processor/manufacturer if you have any questions

Here’s a pretty extensive list of ingredients that my contain gluten.
http://www.tacanow.org/family-resources/hidden-sources-of-gluten/

Be cautious, be smart and leery with taking chances and rolling the dice with something you are unsure of.  There is a great phone app I use called, Fooducate, it’s brilliant.  I can scan the bar codes on items while shopping and it will tell exactly what ingredients are contained. It scans for gluten as well as many other allergens.

Just remember:

“Celiac Disease is NOT an unhealthy response to healthy food but a healthy response to unhealthy food”
Sayer Ji

My mantra is: Always Read Labels. If you can’t read labels, then ask questions. If you don’t get the answer that you are looking for, then DON’T EAT IT!

I won’t lie and say it is not frustrating because it is. Everywhere I turn I have to worry about eating the wrong thing or relying on people who have little or no true knowledge of what gluten-free means and the serious consequences being glutened can cause.

It’s hard dealing with family members or friends that don’t take you seriously. Skipping meals because there is nothing you can eat and you didn’t pack your own snacks. Still feeling sick and not being able to figure out the source(s) that glutened you. And then of course there’s the sheer overwhelming magnitude of it all that can make you feel alone, misunderstood or depressed.

It does get easier and there is so much support out there through Celiac Foundations, Twitter, Facebook… I have to say I am pretty proud of our community coming together and the support, knowledge and education provided. All you have to do is reach out and someone will be there to take your hand, helping to guide you through.

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Comments

  1. Reply

    Kissing is not always Gluten free! Lipstick too is a hidden source!

    • Anonymous
    • June 5, 2013
    Reply

    I went to Buffalo Wild Wings recently – the hostess said they have a gluten free menu and assured me that all the natural wings were gluten free and fried separately. The waitress confirmed gluten free wings. I ordered a Woodchuck Hard cider and was anxiously waiting for my wings when I noticed in very fine print on an insert flyer they had laying on the bar that stated “we can not guarantee against cross contamination since, we use shared fryers”. Come on people – get with it! How many times do I say “I just should have stayed home and cooked”. Disappointing!!!!
    🙁

    1. And the misinformation… They build ya up only to break ya down. Do you have a Fresh Brothers near you?

  2. Reblogged this on GlutenFree Gal.

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Hi, I’m Kirsten

Kirsten is a Registered Dietician in training and a Gluten Free Nutrition Consultant. She has a Bachelors from Illinois State and is working on her Masters in Nutrition at Metropolitan State University in Denver, CO. After graduation she will continue her clinical training and Registered Dietician certification.

Her goal is to provide a path for healthy living to individuals who are seeking a tailored made lifestyle specific to them another needs. Kirsten believes that everyone is different and no one diet can work for everyone, which is why fad diets rarely work for the long haul.

Kirsten also works to make the lives easier and healthier for those with Celiac disease through education and specific tools that have helped her navigate celiac and the gluten free lifestyle maze.

Living the gluten free lifestyle is not an easy one and can be very overwhelming: from testing to grocery shopping, to eating out and deglutening your own household, I am here to walk you through the process from beginning to end. With tips, tricks, humor, healthy recipes and sometimes just an understanding ear, I will guide you seamlessly through.

I was diagnosed with celiac disease in 2010, so I understand completely the trials and tribulations of living the gluten free lifestyle. Please contact me for more information @ glutenfreegal1@gmail.com

 

 

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