This is an important story that I’m sure most mothers and fathers go through after they’ve found out their child has Celiac Disease, hindsight is 20/20. Linda talks about the anguish she feels in the aftermath after learning what was really causing her daughter cries & anguish.
Things Make So Much Sense in Hindsight
Thinking back, of all those things, the days out, the screams in the car on the way home after having eaten Pizza, me in tears thinking ‘another family outing ruined, why do I bother’.
Is there any guilt? HELL YES! I feel guilty all the time, there I was, angry and upset and frustrated with her, and there SHE was, obviously (in hindsight) in PAIN and having a full on reaction.
Any trip in the car was a nightmare, I often had to use all my strength to force her in to her car seat, we had the back arching and the screaming. Funny now that I think of it, I used to give her biscuits to make the car rides easier… and the calm never lasted! I actually cringe at the thought now. POOR POOR girl! Again, this is why I do what I do. Because we just didn’t see it, we just thought we had a ‘very angry child’, we had no idea that she was ILL. We had never heard of Celiac disease. In some ways I feel we failed as parents, simply because we were not educated enough. It’s every parents duty to know about ‘stuff’. It took for vomiting and diarrhea to become so frequent we needed weekly IV’s for us to realize she wasn’t just an ‘angry kid’. In our defense, the doctors didn’t spot it either. Our pediatrician was always commenting about her big big stomach and skinny skinny arms and legs…..
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