Can GLUTEN & GLUTEN-FREE eaters CO-EXIST in Shared Space?

 

Most people who aren’t suffering from Celiac Disease or some form of Gluten Sensitivity would look at the above photo and think nothing of all those little crumbs. When we look at it, we see stress and sickness. We have just started to tackle Celiac Disease and Gluten-Free, now we all need to examine and talk about the dangerous effects of what Cross Contamination can cause.

Cross contamination comes in many forms and sometimes can almost be invisible to the naked eye, especially if you aren’t looking for it. In a shared kitchen everything becomes dangerous. A good friend of mine recently went on vacation with 22 family members, her family of 5 being the only gluten-free out of the group. Her story is not only inspirational to what all of us go through each and every day, she also educates on the difficulties and hardships of what truly being gluten free is like.

Enjoy and please share her story…

Can gluten and gluten-free eaters co-exist in a shared kitchen?
By: Jeanne Reid

A wonderful week long vacation with 22 family members is an annual tradition in my family. OBX is our favorite destination, a gorgeous location with houses big enough for our small army and always a dream kitchen stocked with every convenience.

We do it, all of us, every single year. Except last year. Last summer, my 1 ½ yr old Tommy was terribly ill and the only traveling we did was back and forth to the hospital. So no one went. That’s my family, all for one and one for all – or something like that.

The day Tommy’s GI specialist confirmed my suspicion Celiac was the cause of his illness, I tore apart my kitchen. That gluten crap that we had so loved nearly killed my baby and it was no longer welcome in my house. Out went ALL the food, the toaster, the spatulas, frying pans, even the placemats. On that kitchen demo day, I informed my husband and the kids that they now lived in a Gluten Free Zone. We had no idea that we would soon find out that Celiac wasn’t just Tommy’s disease, gluten was our archenemy. My gluten-loving mother made her home gluten free too, eating her morning bagel in the car, even ushering the guest arriving with a pie straight to the backyard. Needless to say, on my list of worries, getting glutened by cross-contamination at home (or at moms) has not been my concern.

Back to paradise. I admit I was nervous about vacation this year. My little family of 5 is exclusively gluten free and my 2 sisters are now gluten-intolerant-gluten-free (you know what I mean, order a hot dog and toss the roll to avoid the migraine or stomach churn). I talked menus for months, researched area supermarkets, family members began reading labels on snacks they planned to bring and new cookie sheets and a colander were packed. We were ready. And when we settled in, the fridge was stocked with healthy eats and the pantry was filled with gluten free treats. The poison, I mean non-gluten-free-food, was kept in a little cabinet on the opposite end of the kitchen.

And on day 1… we were sick. Not super sick. By now we all know our different reactions, and we were reacting.

I suspected the pots and pans could have traces…the hubby and I found a Walmart and picked up a griddle (my new favorite cooking method) a pot and a pan and a few utensils. My sister splurged on a few new knives and extra cutting boards.

On day 2 we feasted with ease, and on day 2….we were still reacting. This wasn’t fun.

On day 3 I was exhausted and in tears…. I had taken great care and too much time to prepare our food, I spent our vacation spending money on updating someone else’s kitchen and all I wanted to do was sleep. And I think the rest of the crowd was starting to think I had become the crazy-gluten-lady and surely insane. None of us were super-sick like getting full-blown glutened but….

I looked 8 months pregnant in the little beach dress that was supposed to look cute (did I mention I dropped 35lbs of gluten-bloat this year)

I was irritable around my relatives, almost as irritable as the hubby was with me.

I was sad changing my Tommy’s diaper which had that trademark glutened scent (be thankful if you don’t know what I’m talking about).

Sad for my hubby that he spent the morning in the bathroom.

Mad at the hubby for sleeping away the rest of what would be the last sunny beach day.

Sad for my 7 yr old son whose mood swung up and down all day.

Even more sad when the cousins overreacted about the 2 year old needing a diaper change, when it was the big boy whose “I’ve-been-glutened-poopy-problems” were stinking up the room.

Mad at the world when my beautiful little 6yr old girl emerged in her tankini, covered in her “looks-like-I’ve been-beaten” but really “I’ve-been-glutened” Black & Blues.

I cried that night. Not for us. For the others I’ve read about or tweeted with who struggle with celiac because their family doesn’t get it and their kitchens aren’t safe. My family GOT IT and it didn’t matter.

And on Day 4, I took control. Paper plates. Paper cups. Plastic knives, forks & spoons. Special GF sponges. Oh, and I took over the cooking. Almost all of the cooking. And just about all of the rest of the food shopping. For 22 people. Good cooking too – we are on vacation but I’m feeding an army kinda-food. Blueberry pancakes. Ribs & BBQ chicken (brand new grill thankfully). Taco salad. Filet de Beef. Rice. Roasted Potatoes. Two gluten free birthday cakes. And a LOT of fresh fruit. With the exception of an occasional donut spotting or slice of bread, we all ate gluten-free. And we ate well. Really well. Oh, I squeezed in a little crabbing (man those 3 crabs we caught were good – I cooked them too) and a little jet skiing.

But mostly I cooked. Or shopped. My family members were afraid, very afraid of coming near the kitchen and ask me for permission with everything they touched.

And by the last day of vacation, we were all good. And I was exhausted. If only we had 1 more week.

What did I learn? A shared kitchen is hard. Really hard. Way harder than going gluten-free. Cross-contamination is ridiculously hard to avoid.

If you have to be gluten-free and have to share a kitchen with a gluten-eater or 22, here are some tips:

Step 1 – get a big kitchen if you can

Step 2- separate your FOOD

  • Shop like you are shopping for twins. Buy 2 of everything. One for you, one for everyone else.
  • Label it. Fancy labels are awesome. A sharpie works too.
  • Keep a dedicated gluten free space. Designate a drawer in the fridge and a food cabinet all yours.
  • Keep your open package sealed shut. Use GF storage containers, bags or tape ‘em up.

In other words: Your butter is not their butter, make it clear. Invest in your own jars like peanut butter and mayo and sketch out some skull and cross bones or a simple DO NOT TOUCH message, wrap them in duct tape, then hide them really well.

Step 3: Separate EVERYTHING else in NECESSARY too (this step may require a second job, one at Williams -Sonoma would work well).

  • Use your own pots, pans, cookie sheets, colanders, utensils, cutting boards & potholders too.
  • Use your own dishes, knives, forks and spoons too. It may seem radical but I suspect dishes or forks cleaned in an over-crowded or less-than-perfect dishwasher are an issue. If you must share a bowl or silverware, wash and clean everything meticulously. Or do as I did and go plastic. But the environmentalist in me says that’s a bad long-term plan. Do be sure to use a dedicated sponge with a scrubber on the back (bonus points if you can find a way to label your sponge).

Step 4: Take control of your food, or be sure that the person in control of the food knows what they are doing. Educate, educate, educate – resources are endless and this is essential. You can’t ever heal if you keep getting sick.

Step 5: Man up. Be ready to deal with temptation. Sure a gluten free pizza is okay but Oh man a steaming hot “normal” pizza is tempting. Can’t you just hear that little devil on your shoulder saying “what would 1 bite hurt” HA! I know better, I’d never. But I had to knock my husband over the head with a frying pan to keep him away from the Krispy Kremes. Fortunately, it was a new gf frying pan!

For on Jeanne’s story and her info 

 

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Comments

  1. Reply

    Oy! It’s a bummer that Jeanne’s vacation had to be so taken over by managing the cooking and shopping, but such is life (for someone with celiac). Good for her for stepping up and taking charge. Personally, I never want to share a kitchen with gluten ever again! These are great tips for the inevitable times when I have to, though, like when I’m visiting my parents. (They work very hard to prevent cross-contamination, thankfully.)

  2. Reply

    Oy! It’s a bummer that Jeanne’s vacation had to be so taken over by managing the cooking and shopping, but such is life (for someone with celiac). Good for her for stepping up and taking charge. Personally, I never want to share a kitchen with gluten ever again! These are great tips for the inevitable times when I have to, though, like when I’m visiting my parents. (They work very hard to prevent cross-contamination, thankfully.)

  3. Reply

    Some really great tips that I will share with my college celiac son who is sharing a kitchen with two roommates. Thanks!

  4. Reply

    Some really great tips that I will share with my college celiac son who is sharing a kitchen with two roommates. Thanks!

  5. Reply

    Wow! You were brave to go on a trip that would put you to having to eat so many meals together. I know one family meal is definitely hard to not have anxiety over.

    I never imagined that cookware, utensils and plates could STILL contain gluten after washing. Oh man, all those times where I thought we had gone through care to eat gluten free foods but still got sick and we did not understand how. Okay, now that is something I will definitely have to pay attention to. At family get togethers I am scared to put our food next to others. And family members look at me like I am psycho.

    And to have most of your family members to know that you have to eat gluten and try to be mindful of that. That is something I envy, for sure. I just don’t get why many in my family don’t get it. It feels like they just don’t want to even try to understand. I don’t know how to reach them to a point where they get that I get sick, and so does my husband. And I actually believe there are more in my family who have this. But because no one else has been diagnosed with it, and many have said they don’t want to know if they have it (yes, that is right!) just goes beyond my brain. I know my family loves me. I know they don’t want to see me sick. But it seems like they don’t see how serious this is. I think it is because I have done things most of my life feeling bad. And even when we were kids, dad did not seem to think we needed to see a doctor if we were not dying. (He is different now).

    But this post really give me a lot to appreciate and also a lot to pray about. I will definitely be asking God for ways to show my family better how seriously I need them to take this.

    Thanks. Jennifer.

  6. Reply

    Wow! You were brave to go on a trip that would put you to having to eat so many meals together. I know one family meal is definitely hard to not have anxiety over.

    I never imagined that cookware, utensils and plates could STILL contain gluten after washing. Oh man, all those times where I thought we had gone through care to eat gluten free foods but still got sick and we did not understand how. Okay, now that is something I will definitely have to pay attention to. At family get togethers I am scared to put our food next to others. And family members look at me like I am psycho.

    And to have most of your family members to know that you have to eat gluten and try to be mindful of that. That is something I envy, for sure. I just don’t get why many in my family don’t get it. It feels like they just don’t want to even try to understand. I don’t know how to reach them to a point where they get that I get sick, and so does my husband. And I actually believe there are more in my family who have this. But because no one else has been diagnosed with it, and many have said they don’t want to know if they have it (yes, that is right!) just goes beyond my brain. I know my family loves me. I know they don’t want to see me sick. But it seems like they don’t see how serious this is. I think it is because I have done things most of my life feeling bad. And even when we were kids, dad did not seem to think we needed to see a doctor if we were not dying. (He is different now).

    But this post really give me a lot to appreciate and also a lot to pray about. I will definitely be asking God for ways to show my family better how seriously I need them to take this.

    Thanks. Jennifer.

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Hi, I’m Kirsten

I am a Gluten Free Nutrition Consultant who’s goal it is to make the lives easier and healthier of those with Celiac disease and those that choose to live the gluten free lifestyle.

Living the gluten free lifestyle is not an easy one and can be very overwhelming: from testing to grocery shopping, to eating out and deglutening your own household, I am here to walk you through the process from beginning to end.  With tips, tricks, humor, healthy recipes and sometimes just an understanding ear, I will guide you seamlessly through.

I was diagnosed with celiac disease in 2010, so I understand completely the trials and tribulations of living gluten free.

 

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