WHAT IS CELIAC DISEASE?

What is Gluten

There are more people affected by gluten today and it is not just people with Celiac Disease or because it is the fad of the month. Researchers are not sure why the rise in gluten issues seems to be increasing, but there are many contributing factors.   One reason is because wheat has become an over processed, refined product (much like sugar) added to many foods on the market today as a cheap filler.

One big issue about the disease is that only 15% of people have been diagnosed, leaving a rather big number walking around undiagnosed. The concern is that only 1 out of ten people have serious symptoms, 80% are asymptomatic. So, just because you look and feel fine it doesn’t mean you are.

Gluten is a complex composite of proteins found primarily in such grains as: wheat, rye, and barley. Gluten is responsible for the elasticity in dough and binds the ingredients together like glue. The two components in gluten specifically causing gluten issues and the only ones tested so far are: gliadin and glutenin.

You might be asking some of these questions:

  • What is Gluten?
  • Should I consider Gluten Free?
  • What is Gluten Intolerance?

What is Celiac Disease

Celiac disease is a genetic and hereditary autoimmune disease, not an allergy, that damages the intestine; therefore damaging or killing the finger like projections lining the intestinal wall called villi. These villi are necessary for the proper absorption of vitamins and minerals essential to the body’s health and when they stop working, it can lead to malabsorption; causing serious side effects. 

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(Picture by Loftus and Murray, 2010.)

Celiac disease can affect anyone, at any age and if someone in your family is diagnosed, the chances of other family members having celiac or sensitivity raises exponentially. 

When a person with Celiac disease ingests gluten, the immune system sees it as an invader and goes in for the attack. There are two parts to the immune system, the innate & adaptive.  The innate responds first to take out the gluten, but when overpowered, calls in the adaptive in as reinforcements.

Herein lies the problem is, the gluten for some reason (scientific research can’t confirm up to this point why) confuses the two systems, which usually work seamlessly together, to  miscommunicate.  It is this miscommunication that causes the body to attack itself and the small intestine, destroying the villi.

Undiagnosed Celiac disease can cause major damage and affect any part of the body, not just the intestine. 300+ autoimmune diseases, cancer, diabetes, thyroid & mental issues, such as depression, can all be attributed to Celiac disease. 

75% of autoimmune diagnosis concern women and make up some of the top ten diseases that kill them. Scientists are unsure why autoimmune disease is prevalent in so many, especially since we have enhanced immune systems compared to men. Even though autoimmune diseases are becoming more widespread everyday, researchers still know very little about them.

According to the National Foundation for Celiac Awareness, “An estimated 1 in 10 individuals with Type 1 diabetes in the U.S. also have celiac disease.”

Diagnosis Among Family Members 

Once a family member has been diagnosed immediate members like parents, siblings or  children have a 1 in 22 chance of also having Celiac and should be tested.  Secondary members like cousins, aunts or uncles have a 1 in 39 chance of having Celiac.  

Get Tested

wheat allergy is just that, an allergy, which can include: runny nose, watery eyes and at its most severe, may cause an anaphylactic response. Wheat allergies are rare and other parts of the wheat plant besides gluten might be the culprit. There is no such thing as a ‘gluten allergy’ as of late.

Dermatitis Herpetiformis is a chronic disease affecting your skin after eating gluten. Symptoms include: redness, itching, blisters, sores, and bumps.

Gluten Ataxia is a neurological disorder caused by an adverse reaction to gluten. Symptoms effect: vision, balance, coordination, motor skills and mental stability.

Gluten sensitivity has similar symptoms to Celiac disease except there is no intestinal damage that has been proven thus far. Since there are so many areas possibly affected by gluten, the list of symptoms is long and growing; these are only a few:

  • Diarrhea and/or constipation

  • Abdominal pain 
or Indigestion

  • Bloating
 

  • Brain fog 
or Migraines 

  • Joint pain 
-Rashes 

  • Depression and/or Anxiety 

  • Cold Sores 

  • Failure to Thrive
  • Extreme weight loss or weight gain 

  • Nausea
-Vertigo

  • ADD or lack of focus 

  • Mental Instability
  • Infertility or miscarriage
  • Fatigue

Starting a Gluten Free Lifestyle

  • If you are considering starting a gluten free diet, have Celiac disease or are already following a gluten free lifestyle; the first thing you need to do is test micronutrients, vitamin or mineral levels to make sure you do not have deficiencies.
  • During pregnancya doctors supervision is necessary throughout to make sure your anti-tTG antibody and nutrition levels are normal.
  • Ask questions and do your research, do not leave it up to other people to know more about your disease or lifestyle than you do.
  • Always be Prepared, ready with snacks or your own food; there is no room for temptation when it comes to the state of your health

Cross Contamination

Restaurant glutening and CROSS CONTAMINATION is a huge problem, especially with items that say ‘GF’.  The actual ingredients they use might not have gluten but where it’s prepared, the pans cooked in or the utensils used, may.

Never be afraid to ask as many possible questions as you need or speak with the manager or chef. Even the smallest gluten crumb caused by cross contamination found by the immune system causes it to go haywire and attack itself.

Oats are often cross contaminated with wheat and barley, so make sure to look for gluten free certified oats. Also, when it comes to oats some people with celiac or gluten issues can have an immune response  because the Avenin contains a “similar amino acid sequence as wheat gluten” .

Lactose Intolerance can also be an issue because according to the Celiac Support Association, “Lactose Intolerance One generally transient condition that is common in those with celiac disease is lactose intolerance. Lactase is produced in the tips of the villi. If lactase is not present to facilitate digestion of the milk sugar, lactose, the body reacts with symptoms such as bloating, gas and/or diarrhea. A simple test for lactose intolerance can be administered during a routine physician visit. Other carbohydrate intolerances may be present for a while after diagnosis.”

Here’s a few food examples of what to look out for:

  • Sauces/dressings (wheat is used as thickening
agent)

  • Iced tea may contain barley
- sausages/meatballs (wheat is used as binder)
  • Cross contamination with other food, utensils or work space
  • Staff members who might not take you seriously

*Misc. Products that may contain wheat:

  • Multi vitamin
- aspirin coating/medications

  • Cough syrup/cough drops

  • Bathroom items 
and lip balms
  • Pet food
(make sure to wash hands after handling)
  • Products that say GF but made in wheat facility
using shared equipment

  • Candy

  • Yeast

*If sharing a kitchen with a gluten person then you need to take extra precaution with:

  • Utensils

  • Toaster

  • Pots n pans
  • Shared plates

  • Cutting board

  • Counter crumbs

  • Shared food like: peanut butter and jelly, butter, cream cheese, potato chips, etc…

*Different names wheat is called by:

– Triticale (a hybrid of wheat and rye)
- Malt
- Duram (durum)
- Hydrolyzed wheat protein
- Semolina
- Einkorn
- Emmer
- Kamut
- Spelt
- Bulgur
- Graham
- Farina
- Matzo
- Couscous
- Rusk (a fancy way of saying bread crumbs)
- Seitan

*Here are catch phrases to look for and use caution with:

– Binder or binding
- Cereal
- Filler
- Gum base
- Modified food starch
- Modified starch
- Monosodium glutamate (MSG)
- Edible starch
- Starch
- Thickener or thickening
- Carmel Color
- Natural Flavors

Gluten Free Labels

I suggest gluten-free labels for your home, work or school areas to make it easier to identify a ‘gluten free space’ or food. Keep in mind, processed food is processed food, regardless if it is gluten free or not, gluten-free does not mean healthy. Take gluten-free one day at a time and remember; you might be staving off now something worse gluten may cause in your body later.

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To truly live a gluten free lifestyle takes discipline and planning, it comes with the territory, as does frustration and feeling completely overwhelmed at times.  There is a lot of support out there and right here, so do not be afraid to use the resources available.  

 

GET TESTED

                                                                  Ditch the Diet Live the Lifestyle
                                                               Change Starts one person at a time 

 

 

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